What is cleft palate?

Cleft palate is a treatable birth defect. It happens when the roof of the baby's mouth (palate) doesn't develop normally during pregnancy, leaving an opening (cleft) in the palate that may go through to the nasal cavity. A cleft can form on any part of the palate, including the front part of the roof of the mouth (hard palate) or the small flap of tissue that hangs down from the soft palate (uvula). It may appear by itself or along with other birth defects of the face and skull, such as a cleft lip.

Cleft palate and cleft lip are the most common birth defects of the head and neck. Until a cleft palate is treated with surgery, it can cause problems with feeding, speech, and hearing.

Some forms of cleft palate are easy to see when the child is born. But even if the cleft palate doesn't affect how the baby's face looks, it can usually be seen inside the mouth.

Babies who have a cleft palate often have feeding problems because they aren't able to suck and swallow normally. But this doesn't always last, especially with treatment.

A doctor can diagnose a cleft palate by doing a physical exam of the baby's mouth shortly after birth.

Fetal ultrasound can sometimes find cleft palate, especially if the cleft palate is severe and occurs along with a cleft lip. But ultrasound doesn't always find the problem, so doctors can't always rely on it to diagnose a cleft palate.

Treatment for cleft palate involves a team of health care providers. The type of treatment depends on how severe the problem is.

Surgery is the most common treatment for a cleft palate. It's usually done before a child is 12 months old. Before surgery, your baby may need treatment for breathing or feeding problems. Your baby may also wear a mouth support (such as a dental splint) or a soft dental molding insert along with medical adhesive tape.

As your child grows, your child will probably need more than one operation. But the problem is normally fixed by the time a child is a teen. Although surgery often leaves scars, the palate usually heals well and leaves few signs of the cleft. A child's facial bones most often grow as expected, and the child speaks more clearly.

Some children need treatment for other problems, such as speech, hearing, or teeth problems; sinus and ear infections; or problems from surgery.

Caring for a child who has a cleft palate may take time and patience. If your baby has a cleft palate, you may need help with feeding. A nurse can guide you on feeding techniques.

As your child grows, watch for infections and pay special attention to your child's dental care, hearing, and speech. Talk to your doctor if you notice any problems or you have questions or concerns.

Be open to talking with your child about their condition and answering their questions. For example, your child may want to know how a cleft palate forms. This will help your child know how to answer questions from other children and adults.

If you need help, seek support from friends and family. You may find it helpful to talk with your doctor or to see a counselor. You can also join a support group to meet others who are going through similar challenges.