What is ileostomy?

Surgery can be stressful for both your child and you. This information will help you understand what you can expect. And it will help you safely prepare for your child's surgery.

Preparing for surgery

• If your child is old enough, talk to them about the surgery. Say that it will help your child's body get rid of waste. Hospitals know how to take care of children. The staff will do all they can to make it easier for your child.
• You may need to take your child to the hospital the day before surgery to prepare your child's colon. Your child will get laxatives to completely empty the colon.
• Ask if a special tour of the surgery area and hospital is available. This may make your child feel less nervous about what happens.
• Plan for your child's recovery time. Your child may need more of your time right after the surgery, both for care and for comfort.
• Understand exactly what surgery is planned, along with the risks, benefits, and other options.
• Tell the doctor ALL the medicines, vitamins, supplements, and herbal remedies your child takes. Some may increase the risk of problems during the surgery. Your doctor will tell you if your child should stop taking any of them before the surgery and how soon to do it.

The day before surgery

• A nurse may call you (or you may need to call the hospital). This is to confirm the time and date of your child's surgery and answer any questions.
• Remember to follow your doctor's instructions about your child taking or stopping medicines before surgery. This includes over-the-counter medicines.

Activity

• Allow your child's body to heal. Don't let your child move quickly or lift anything heavy until your child is feeling better. When your child is active again, a support belt can help secure the ileostomy pouch.
• Have your child rest when they feel tired.
• Your child will probably need to take 2 to 4 weeks off from school. But check with your doctor first.
• Many children are able to return to normal activities within a few weeks after surgery.
• Your doctor will tell you when your child can shower or take a bath after surgery. Your child can shower with or without the ileostomy bag. You don't need to worry about getting the stoma wet.

Diet

• Your child may not have much appetite after the surgery. But try to help your child eat healthy foods.
• Have your child drink plenty of fluids to avoid becoming dehydrated (unless the doctor tells you not to).
• Give your child a low-fiber diet for several weeks after surgery. It's best for your child to eat many small meals throughout the day. Add high-fiber foods a little at a time.
• Your doctor will tell you which foods are best for your child and which ones to avoid. This will help reduce gas and prevent runny stools and blockage of the stoma.
• Your doctor will tell you if your child needs to take certain supplements, such as vitamins.

Medicines

• Be safe with medicines. Read and follow all instructions on the label.
  • If the doctor gave your child a prescription medicine for pain, give it as prescribed.
  • If your child is not taking a prescription pain medicine, ask the doctor if your child can take an over-the-counter medicine.
• Your doctor will tell you if and when your child can restart their medicines. The doctor will also give you instructions about your child taking any new medicines.
• If the doctor prescribed antibiotics for your child, give them as directed. Do not stop using them just because your child feels better. Your child needs to take the full course of antibiotics.
• Your doctor will tell you if your child needs to take some medicines in a different form now that they have a stoma. You may need to crush pills or give your child a liquid form of the medicine.

Incision care

• If your child has strips of tape on the cut (incision) the doctor made, leave the tape on until it falls off.
• Gently wash the area daily with warm water, and pat it dry. Don't use hydrogen peroxide or alcohol. They can slow healing.
• You may cover the area with a gauze bandage if it oozes fluid or rubs against clothing.
• Change the bandage every day or if it gets wet or dirty.

Other instructions

• If the skin under your child's pouch is red, irritated, or itchy, you need to treat the skin. Follow these steps:
  • Gently remove the pouch.
  • Clean the skin under the pouch with water.
  • Dry the skin.
  • Sprinkle ostomy protective powder on the skin, and then blot it off.
  • Reattach or replace the pouch.
  • If your child keeps having skin irritation, talk to the doctor.
• Follow all instructions from your doctor or ostomy nurse.
• Empty and replace your child's ileostomy bag as often as directed by your doctor or ostomy nurse.